The NEW Heart

First off I want to start by saying that we have the best friends and family that I could ever imagine.  I am writing today to let you know that ZAK made it on to the transplant list. 

There are 3 lists that you can be listed on and he is put on the most urgent list.  We are still in the PICU at Amphlatz Children's Hospital in Minneapolis.  We were given the choice before listing him to pick the primary hospital that we wanted to be listed at either here or in St Louis.  We decided to stay here so that we could stay connected to our network of friends.

The wait time is the most trying time for most families because you have no idea how long it could be we were given a very broad window of 3 days to 425 days.  This is the range of time that other families had to wait in the past 2 years. 

Tonight we are going to take some time and talk to Zak about needing a new heart and that we are waiting for one.  Please pray that we will have the right words to say and that he will understand without being afraid.  We have been supported by the child social workers that at the hospital they call child life services.  Anytime we aren't sure what to say about what the doctors and nurses are doing they help by explaining it in a child friendly way.  Two days ago he was really concerned that he was going to run out of blood because they were always coming in to draw more.  The child life worker came in and made blood with all the different parts plasma (karo syrup), red blood cells (red hots) etc. So they mixed it all up and talked about how more was made and this really helped him to not worry about what was happening so much.

We feel God's presence with us helping us along this journey.  We have a long road ahead of us.  We plan on trying to update the blog at least a couple days a week so that you can join us and know how to pray for our family. So stop back often and we will do our best to keep you posted.

Blessings The Kindberg's