Zechariah had the cardiac catheterization yesterday and we received news we were not ready to hear...I don't know any parent that would be ready to hear it. (I will try to put it in simple terms.)
The issue that has been a mystery since Zechariah had open-heart surgery 4 years ago is what is causing his elevated pressures in his heart. So we went into the Cardiac Cath hoping to find answers and something that they could do to help Zak.
Instead what we heard was that because of Zak being born with Critical Aortic Stenosis, the leaking of the valve after the 2 valvo plasties, and the extended time that he was on the heart and lung machine when he had the Ross Procedure done, his heart is weak. All of these things combined have put to much pressure on his little heart so his heart muscle is weakened and no longer relaxes properly. Thus causing the elevated pressures. This is what the Dr.’s told us is the beginning of heart failure.
The Dr.’s also told us that there is no know medicine to help him because he is still acting really healthy. We can only wait. As he gets sicker there is a drug that can be administered daily through an IV. And another thing is be prepared to have him go through a heart transplant.
This is all really heavy trying news to hear about your 5 year old Suddenly trying to decide which school he attends next year doesn’t seem to matter. Thankfully however we serve a God that is much bigger than this. We know that God has a plan for Zechariah. We also know that we don’t have to do this on our own but we can call on our friends and family to pray with us expecting for God to change these circumstances.
Lamentations 3:23-25 They are new every morning; great is your faithfulness I say to myself, “The LORD is my portion; therefore I will wait for him” The LORD is good to those whose hope is in him, to the one who seeks him;
Isaiah 40:31 but those who hope in the LORD will renew their strength They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Hebrews 4:16 Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.
The issue that has been a mystery since Zechariah had open-heart surgery 4 years ago is what is causing his elevated pressures in his heart. So we went into the Cardiac Cath hoping to find answers and something that they could do to help Zak.
Instead what we heard was that because of Zak being born with Critical Aortic Stenosis, the leaking of the valve after the 2 valvo plasties, and the extended time that he was on the heart and lung machine when he had the Ross Procedure done, his heart is weak. All of these things combined have put to much pressure on his little heart so his heart muscle is weakened and no longer relaxes properly. Thus causing the elevated pressures. This is what the Dr.’s told us is the beginning of heart failure.
The Dr.’s also told us that there is no know medicine to help him because he is still acting really healthy. We can only wait. As he gets sicker there is a drug that can be administered daily through an IV. And another thing is be prepared to have him go through a heart transplant.
This is all really heavy trying news to hear about your 5 year old Suddenly trying to decide which school he attends next year doesn’t seem to matter. Thankfully however we serve a God that is much bigger than this. We know that God has a plan for Zechariah. We also know that we don’t have to do this on our own but we can call on our friends and family to pray with us expecting for God to change these circumstances.
Lamentations 3:23-25 They are new every morning; great is your faithfulness I say to myself, “The LORD is my portion; therefore I will wait for him” The LORD is good to those whose hope is in him, to the one who seeks him;
Isaiah 40:31 but those who hope in the LORD will renew their strength They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Hebrews 4:16 Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.
Romans 4:20 Yet he did not waver through unbelief regarding the promise of God, but was strengthened in his faith and gave glory to God, 21 being fully persuaded that God had power to do what he had promised.
Hebrews 11:6 And without faith it is impossible to please God, because anyone who comes to him must believe that he exists and that he rewards those who earnestly seek him.
4 comments:
I will pray for zak, please keep me updated.
Matthew 12:15 Many followed him, and he healed all their sick,
Seeking for a miracle with you... praying, believing, and trusting God to comfort you with the comforts only He is able to give, hoping in the One that gives us hope. We love you guys. Thank you for the updates. Please contact us if you need anything at all.
Laura told me about Zach today at work. Our hearts go out to you. That is not a statement I make lightly. Our HEARTS go out to Zach. Everyone who is praying for you should have that same intentional motion. As all the hearts of people who love him and believe in his heart being healed GO OUT TO HIM, the power of a God who heals will come and join our hearts to his and bring the miracle he needs. Hearts, this is the time, this is the season. Inside the heart is love and love never fails. Our prayers come with our hearts and we believe there will be a change, there will be a miracle. Waiting to hear the good news!
DEAR LORD JESUS WE KNOW U ARE GIVING ZAK A NEW HEART.LORD SHELTER ALL THE FAMILY IN YOUR LOVING EMBRACE.JESUS I KNOW HIS GRANDMA CLARE BELIEVES AS WE ALL DO THAT MIRACLES HAPPEN ALL THE TIME .LORD I KNOW ZAK CAN GLORIFLY U IN TESTIMONY OF HIS MIRACLE.LORD JESUS ZAK IS 1 OF THOSE ANGELS THAT LIVE ON EARTH.THANK U JESUS FOR SHELTERING THIS FAMILY LORD IN YOUR SHELTERING ARMS & WE THANK YOU JESUS FOR ANSWERING PRAYERS.AMEN MAW
Post a Comment