First off I want to start by saying that we have the best friends and family that I could ever imagine. I am writing today to let you know that ZAK made it on to the transplant list.
There are 3 lists that you can be listed on and he is put on the most urgent list. We are still in the PICU at Amphlatz Children's Hospital in Minneapolis. We were given the choice before listing him to pick the primary hospital that we wanted to be listed at either here or in St Louis. We decided to stay here so that we could stay connected to our network of friends.
The wait time is the most trying time for most families because you have no idea how long it could be we were given a very broad window of 3 days to 425 days. This is the range of time that other families had to wait in the past 2 years.
Tonight we are going to take some time and talk to Zak about needing a new heart and that we are waiting for one. Please pray that we will have the right words to say and that he will understand without being afraid. We have been supported by the child social workers that at the hospital they call child life services. Anytime we aren't sure what to say about what the doctors and nurses are doing they help by explaining it in a child friendly way. Two days ago he was really concerned that he was going to run out of blood because they were always coming in to draw more. The child life worker came in and made blood with all the different parts plasma (karo syrup), red blood cells (red hots) etc. So they mixed it all up and talked about how more was made and this really helped him to not worry about what was happening so much.
We feel God's presence with us helping us along this journey. We have a long road ahead of us. We plan on trying to update the blog at least a couple days a week so that you can join us and know how to pray for our family. So stop back often and we will do our best to keep you posted.
Blessings The Kindberg's
The Zak Update: The Kindberg's Journey Down The Road To A New Heart
8 comments:
I know that God is mighty and I know He will be close to you. I pray that you have divine appointments with people that will help you, strengthen you, and give you hope. I will keep the prayers coming your way. I'm sure you are doing amazing as a mom:) MUCH LOVE Rebekah
ohhh!! tears are rolling and prayers are rising!!
Praying that you all and especially Zak would know His Wondrous Person and Presence in an increasing and extraordinary way!! That fear would not have a foothold, and God's peace would RULE over your hearts. That He would deliver this precious new heart to and heal him speedily!!
May you hold fast to your anchor of hope (unshakable confidence) that you are tied so securely to. May you stay fixated on Him, and the light of His Word in this dark night..until our Morning star ushers in the dawn for you. (2 Pe 1:19) May He rise up in your hearts!!
God's love & blessings,
Cara
We love you and are praying for you.
Rian and Jeanene
Continued prayers are with you guys. I just heard this on K-Love and thought it might comfort you....a bumper sticker seen on a car:
"Relax, God is in control".
Love you guys.
Wendy & Russ and the K Krew Gang
I'm a friend of your friend, Kathy Gustafson, and am honored to make this journey with you. Have been down this road several times before and am here to tell you that our Father-God, the great El Shaddai, is MORE THAN ENOUGH! The word from His Word that comes to me today is "Be still, and know that I am God". In the stillness and in the knowing, there is peace and victory.
With rock-ribbed trust in Him for you,
Jackie
I'm a friend of your friend Kathy Gustafson and have been down the heart transplant road several times with family and friends. It is an honor to travel along with you, sharing as the Lord leads. The word that came after reading your report above is "Be still, and KNOW that I am God". He is indeed our great Father-God, our great El Shaddai, the God who is MORE THAN ENOUGH! Great, oh so great is His faithfulness!
With rock-ribbed trust in Him for you,
Jackie
ZAK AND U A LL ARE IN OUAR PRAYERS AT THE LIGHHOUSE RADIO STATION. EVERY SHIFT HAS BEEN PRAYING AND WE EXPECT A MIRACLE! I AM THE MANAGER OF THE RADIO STATION AND A FRIEND OF CLARES'S. GD IS GOOD ALL THE TIME!!!! AND WE CAN DEPEND ON THAT!
Dear Scott and Kathy,
I hate to be meeting you under these circumstances, but your story was shared with me through Carina Ruhlandt. She shared it with me because my six year old daughter received a heart transplant just two years prior. My wife and I are just a few steps in front of you regarding this journey that the Lord has you on. We are some of the few people who can earnestly say that we know what you're going through. I want to encourage you, now that we're on the other side, that this journey with my daughter has been the best thing that has ever happened to us spiritually. We would love to meet with you to be a support and answer any questions that you may have. I'm a professor at North Central University; we live in Eden Prairie.
Please, please consider contacting us. We were blessed to have some believers who had gone through the process with their child connect with us and help guide some decisions.
You can contact us at any of the information below.
Many blessings,
Bill and Natalie
wetibbet@northcentral.edu
952.836.7178
Post a Comment